Monday, August 10, 2009


Mom apparently had a great time out at Lusby, Maryland yesterday, despite the heat and humidity. We're prepping for another week of radiotherapy, and then Mom has an appointment with her neurologist, Dr. Benson. I imagine he'll be happy to see how functional she is compared to when he last saw her.

We're also preparing questions for Dr. Tonnesen regarding the spread of Mom's tumor. Of critical importance is the vexing problem of why the doctors kept telling us not to worry about Mom's having missed treatment for several weeks, when the fact is that the latest MRI results show a noticeable spread during the time she missed treatment. You'll recall that this was a major worry for me: Mom was on her daptomycin regimen, and I kept wondering aloud whether we were missing the window of opportunity to treat Mom. I know that, in the grand scheme of things, no treatment is going to help her, but granting Mom as much life as possible, at as high a quality as possible, should be the goal for all of us.

Later today, after the neurologist's appointment, Mom is supposed to visit a friend for dinner. Whether she'll be in any shape to do that is up to her; we already cancelled another such visit about a week ago. Mom is prone to sudden bouts of fatigue thanks to the radiotherapy she's been receiving, so it's possible that today will end up the same way-- with a cancellation. We'll see.

UPDATE, 12:36PM: We're also going to try to see Dr. Tonnesen for a few minutes today. I had mentioned him above, but didn't know, at the time, that a meeting with him was possible today. Thursday is our normal day to see him, but our questions are urgent enough that we wanted to see him earlier. If we do see him today, I'll let you know what he says.


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